Investigator-initiated registry hosted by non for profit
organization (UNEV)
Academia-driven (supported by GA²LEN, EADV and WAO, endorsed
by GA²LEN, EAACI and EADV Task Forces for Chronic Urticaria)
Cooperation with stakeholders (industry, patient
organizations, payers, health authorities)
Open to all urticaria-treating physicians
International approach: The registry will be launched
initially in Germany, Spain, France, Italy and UK. Later it
will be extended to the rest of Europe, USA, Canada, Brazil,
India, China and Japan, etc.
Key Features of CURE
Web-based-registry
Basic data (Physician module) – entered once (30 minutes)
Follow up data (Physician module) – entered every 6 months
(15 minutes)
Patient module (in preparation)
Recruitment Plan
1st year: 250-500 new patients
2nd year: 500-1000 new patients
3rd year: >1000 new patients
Contact
Chronic Urticaria Registry
urticaria network e.V.
Schönhauser Allee 163
10435 Berlin